I just returned from the Doctor's office and they want to hold off on their definitive statement as to the classification. The Pathologist wants a second opinion regarding the NSIP classification consequently the samples are also being sent to the Mayo Clinic in Scottsdale.
Apparently there remains a lot of questions with this disease and it is not unusual find a lot of grey area's and overlapping symptoms. The Doctor would say that I do not have the "worst of the worst" with no hope or cure so that was good news. They need a little more time to catagorize the type of fibrosis and the subsequent treatment. I should have more information after the Holidays and that's O-K because I have decided to not worry about it and ENJOY a beautiful Christmas with friends and family. Why not!
Merry Christmas,
Dwight
This blog is dedicated to the biggest Ute fan and the best guy in the world - Dwight Osborn. He was diagnosed in July 2009 with Idiopathic Pulmonary Fibrosis, a deadly lung disease with no known cure or treatment that kills as many people every year as Breast Cancer. He was put on the transplant list at the U (go Utes!) on November 29, 2011. We received the call on Friday, December 23rd around 7pm and Dad received the greatest gift ever on Christmas Eve. It really is a wonderful life!