It's been a while so I thought I ought to update this blog. I have been to 2 clinical trial infusions which I do once a month. there have been no noticeable side affects but I have no noticeable benefits either. Things have remained stable so far. Maybe I am on a placebo and that is why. time will tell I guess.
I am very thankful that I can function very well during the day and maintain my oxygen levels above 90 with normal activities. Try to jog or lift or anything strenuous and that is a different story. I am on oxygen at night and actually prefer the mask--it keeps out noise and keeps my airways open. I do sleep better with it.
Spring is almost here and I have to admit I get jealous when I see the joggers out. I am greatful though that I did have that era in my life and will always be thankful. I tried jogging with oxygen but it didn't seem to make any difference.
Anyway, Life is good!
Dwight
